Fundraising 5k run along Morecambe prom will help little Lexi

Lancaster resident Joshua Brandwood was moved to help after reading our recent story about Lexi Tindale.

Lexi has the incredibly rare neurological condition Krabbe disease, which affects just one in 100,000 births.

There are currently thought to be just eight children in the country with the incurable disease - and the average life expectancy is only two years old.

It is now hoped that Lexi - who turned two in February - can enjoy as much of the time she has left with her family.

Josh said: "I cannot begin to imagine the sheer anguish and heartbreak Lexi's family must feel each day knowing the inevitable. No parent wants to outlive their children.

"Although as a parent I understand that nothing people say or do will make the prospect of losing a child any easier, I couldn't help but reach out to Lexi's parents to show my love and support.

"After speaking with Lexi's mum, I learned more about her wonderful two-year-old and found that she loves sensory rooms and animals.

"With mum's approval and gratitude, I set up a fundraising page, which has so far gathered a whopping £600 of the £1,000 target."

Joshua will be hoping to boost his fundraising with a 5k run this Saturday, starting at the clock tower on Morecambe prom at 1pm.

Anyone is welcome to join the run while adhering to social distancing guidelines.

Joshua has invited Morecambe legends, Tyson Fury and Isaac Lowe, although is still awaiting official confirmation.

"Having two of the most established boxers in recent times back the event would undoubtedly help raise awareness and funds," he said.

All proceeds will be used for Lexi to fulfil her dreams and make memories with her family.

To donate, go online here