Joe Worgan column: Campaigns mean such a lot to my family and I

Guardian columnist Jo Worgan
Guardian columnist Jo Worgan

This week has heralded the start of two national campaigns which coincide with Learning Disability Week. Both mean a lot to me and my family.

Mencap launched their campaign, ‘Who is Your Superhero?’ on Monday and the theme this year is celebrating the superhero in your life. How fantastic.

They want to celebrate all the families out there who have children with a disability or additional needs and while doing so raise awareness through the likes of facebook and Twitter. Needless to say I have been tweeting about Tom and Stephen.

The second campaign that has been launched is Mumsnet’s ‘This is My Child’ campaign. This I feel is very important as it is an awareness raising campaign as well as busting the many myths that surround having a child with additional needs.

It is all about supporting the carers, giving support and information and celebrating these families.

The campaign states that they want to “open up a conversation about how we can all act to make life easier for everyone caring for children with additional needs”. This is so very important I feel.

We just want our children to be accepted and included within society and for us as parents to feel supported and accepted while doing so.

The campaign site has a wealth of information raging from resources, information from Mencap and Contact a Family as well as giving helpful strategies and dispelling myths about special needs.

There is also a gallery page.

I very much welcome this campaign. More awareness, inclusion and support are needed for all concerned.

I will end by sharing something that I wrote a while ago as I feel that this sums up the way that I feel as a mother to an autistic child.

“I see autism as having many different strands. All of these strands are beautiful. They are all the colours of the rainbow intertwined intricately into the child.

If you try and take away the autism by removing the strands you also take away parts of the child as they are attached to them. They are what make them who they are.

However autism is only a part of them, not the whole. It does not define them.”