It is incredibly isolating... we need a lifeline

A stunning sunset over Morecambe Bay. Photo by Sheila Smith.
A stunning sunset over Morecambe Bay. Photo by Sheila Smith.

A man from Morecambe battling muscular dystrophy is leading calls for a specialist care worker to support hundreds of adults suffering with muscle wasting conditions.

Martyn Blenkharn, 53, from Morecambe, who has Facioscapulohumeral (FSH) muscular dystrophy, said: “It’s hard enough trying to get through each day, living with a muscle-wasting condition.

“It’s incredibly isolating and so hard to navigate services on your own.

“Sometimes it can feel like you have nowhere to turn.

“To have someone near you who can offer support, just when you need it most, would be an absolute lifeline for me and so many adults in the area.”

Despite the progressive conditions leaving adults at risk of dangerous heart and lung problems, there are no specialist care advisors working with adults based in North Lancashire and Westmorland.

Muscular Dystrophy UK is now appealing to regional NHS England commissioners to secure a second care advisor, to ensure that adults across North Lancashire and Westmorland receive the same vital support they desperately need.

Bobby Ancil, Neuromuscular Outreach Manager at Muscular Dystrophy UK, said: “We need NHS commissioners to act now, appoint a new care advisor and ensure adults are not left at risk.”