Heartbreak for Lancaster mum

Sisters Ashleigh, eight, (left) and Alisha Lennon, five, who suffer from a rare genetic disease.
Sisters Ashleigh, eight, (left) and Alisha Lennon, five, who suffer from a rare genetic disease.
0
Have your say

A LANCASTER mum has spoken of her heartache at seeing her youngest daughter showing symptoms of a disease which will claim her and her sister’s lives.

Ashleigh and Alisha Lennon suffer from a rare genetic disorder, which means they are likely to die before the age of 12.

Ashleigh, eight and Alisha, five, are the only sisters in the country to both suffer from Batten’s disease, which affects one in every 300,000 births.

The neurological condition means their bodies are gradually shutting down, and they will die between the ages of eight and 12.

There is no cure or treatment.

Mum Jayne, 36, says it is difficult to see Alisha, who was previously active and mobile, begin to follow the same path as her sister.

Jayne, who also has a 16-year-old daughter, Lucy, who does not have the condition, said: “Walking is becoming more difficult for Alisha – she keeps losing her balance and falling over.

“It is not any easier the second time around, but at least I know what to expect, and can make sure things are put in place.

“It is history repeating itself and is heartbreaking.

“I hate birthdays, and Ashleigh turning eight was particularly hard, as she is predicted to die between the ages of eight and 12.

“But I try not to look at the past or future, but instead enjoy every day I have with my girls.” The sisters were struck by the disease, as unknown to Jayne and their father, who she is separated from, they were both carriers of a faulty gene.”

See the Lancaster Guardian (15-09-11) for full story.