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Jo Worgan column

Guardian columnist Jo Worgan.

Guardian columnist Jo Worgan.

Last Sunday was ‘Autism Sunday’, also known as the ‘International Day of Prayer for Autism and Asperger’s Syndrome’ and although I am not overly religious this gave me the opportunity to reflect on life and to be thankful for my little boys, husband, friends and family.

After a rather stressful week last week, in which Tom was withholding poo, I won’t go into too much detail, I vented my fears and worries about this behaviour on various social media sites and my blog and received lots 
of support from other parents who are also raising children on the autistic spectrum.

I also gained support from Tom’s school and received a wonderful social story from them, all about doing a poo in the toilet.

The point I am trying to make though is that there is a wealth of support and ‘friendship’ out there for us parents of autistic children and thank goodness I say for the internet.

I wrote a piece last week for Autism Daily Newscast, an online autism daily newspaper about the wonderful Anna Kennedy OBE, who is a tireless autism campaigner and advocate and how she was phrasing social media and especially Facebook’s 10th anniversary for these very same reasons.

Twitter and Facebook are indeed places to both fund and offer support to others who have autistic children.

Sunday was indeed a time to reflect upon all of this and to celebrate my wonderful little boy who just happened to be autistic.

I also thought about our family dynamics and how things have changes over the years due to Tom’s diagnosis.

What I thought most about though was the very special bond between Stephen and Tom and what a caring big brother Stephen is, he too is very special.

I also thought about the journey that I have been on and that my life is now very different to that from five years ago, but then I suspect that a lot of parents would say this.

For us though having an autistic child in the family does put certain strains and demands upon family life, there is no denying that.

But we accept these challenges, and we wonder just where this new journey will take us.

 

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